Patient and Caregiver Diaries

Patient Diary -- Jo Jordan

oldest to recent

2  3  4  5  6  7  8 
Friday, April 21, 2000

This might just ramble on for a while. I never did a diary thing befor..I did work for years where a station log was required telling everything that happend sorta like a ships log.. I wont make my entries like that after this first one...I will gtry to make them interesting and motivating if I can...A note.. Yesterday I assisted in catching a live Bull alligater 10 feet 11 inches over four hundred pounds. I find that people will let me do things if I will try....I have to let them know that I WANT TO TRY....Yup I got PH..Was treated for asthma and various heart problems for years.. Finaly I was referd to a pulminary specialist and he had a bunch of tests performed on me scans breathing capasity,sleep aptnia. Then he had the right side heart cath done and dignoised PH. He told me it was a very rare problem and he had only seen it once but thought it could be taken care of.. he put me on coumadin and albuterol,usp and advised me to loose about 65 pounds.....I lost about 18 pounds and three months later was doing very good....About a year ago chest pains started again..All kinds of heart tests were done had a seisure douing a stepthalium test or a mild stroke, never did decide which..also went intoconginatelheartfailure.. angiaplast and a stent was done to my heart.. Finaly back to the Pulminary Dr and he did more scans and x-rays and said my PH was critical nd if I didnt loose more weight it would lead to a very excrusiatingly painful death..Kinda knocked the wind out of my sails. Sent me to heart rehab . While in Heart rehab they discoverd I was running on 84% oxygen saturation and put me on oxygen full time and started me on pulminary heart rehab.. Never did get much better in rehab .. finished the course and now go to the same rehab clenic three times a week which I have to pay for. The Dr will not give me an ok to go to a regular gym to work out saying he wants me watched during all workouts..This is probably good cause I still have trbls. I will check in to the rehab with normal BP pulse and oxygen and after somtimes a very short warm up and about ten minuted work out the pulse will be high BP 169/116 and oxygen still ok, Im on oxygen fulltime at nr 2 Other meds:

HCTZ25mg,,,POTASSIUMCHL(SLOW-K) 8MEQ..FURROSEMIDE 40 MG..TENORMIN 25MG PO...COZAAR 50MG...ZOCOR-PO 40MG...NITROGLYCERIN for chest pain...ROXILOX5/500MG For pain. The ROXILOX makes me hyper..

Ok that sorta catches me up to where I am medicaly.

Befor the oxygen I couldnt get to me truck out front with out being totaly exhausted..I never slept well, up many times nightly Now I am out and about almost all the time..I function very well as an assistant alligator trapper for the state of Florida. I am trying to stay as active as I can..This job is not as physical as most people emagin I feel the longer I can stay out and about the longer I can stay out and about

Today I went to rehab... Had BP trbl and sugar trbl..

Took grandkids fishing this morning

Helped soninlaw build Pinewood Derby race cars.

I hope you had a plesant day as well.
Read Comments (0)   •    Make a Comment







Saturday, April 22, 2000

Went out to pick up my morning newspaper and saw Big Reg (the sun) just comming up.. Was realy somthing to see. Ill have to look again tomorrow. Had lotsa chest pain today and cramps in my legs that I just couldnt seem to work out.. Said the heck with it and enjoyed the day anyhow..My gunclub was having a rifle competition which I usualy compete in...But I just couldnt get up enough "Gumption". So I ran the firing line and did all the scoring.. Gumption?...Thats a word my grandmother liked to use to motivate us yungerns from time to time. Another one she liked was. "Aint you got no backbone?" .. That one would realy get us goin. Trying like I said yesterday to keep these a little shorter.. maybe more people will read them..

Dragon Slayer for Hire Poacher..jo
Read Comments (0)   •    Make a Comment







Sunday, April 23, 2000

I didnt sleep well lastnite 2 much pain.. Took my LOC pain killers and as always they dull the pain but make me hyper and I dont sleep.

Spent the nite going through my old memories...Finaly the morning arrived, I went out 2 get the paper and found the "Master painter" had painted an even greater painting of "Big Red" than he did the day B 4.. It was a grand sight.

I turned to check out my troubles tree where I had left my troubles from yesteday and couldn"t find the tree.. I was still very tired and SOB today so I just did odd maintenance jobs around here.

I built a squrril house for my wild squrills 2 raise a family in a while back.. Today a couple of birds I cant identify started nesting in it and driving all other critters away..I guess Mama nature decides who lives where...I spent a lot of time looking in my bird books and chatting to other critter watchers trying to identify these birds..I consider this an ongoing project till I find out..

Why don't U look out your window or come out side with me in the morning and see how "Big Red" Looks

May your Breath come easy..

Poacher..jo Luvs Ya
Read Comments (0)   •    Make a Comment







Tuesday, April 25, 2000

Off and running on another day.. Yesterday I got copies of all my records from my Pulminary functions DR. found where he just started refering to my problem as PH. in the records. Talked to the clerk and she said I could get more info about the Right heart cath from the Dr woh did it. Who just happend to be my Heart Dr. So went by his office and got the report.. Now all I gotta do is figure out what all this means.. Its Greek 2 Me!.. My second language is Turkish so Im not doing very well figuring out this stuff.

I slept well again lastnite and was up befor "Big Red". I have alrerady fixed the dripping in my wifes shower. That put me in good with her for today..Hope Yu'all have things nice and going your way today..And remember the Poacher Luvs Ya all
Read Comments (0)   •    Make a Comment







Thursday, April 27, 2000

I skipped a couple of days putting somthing in here. No one complained so I guess its ok..

Got all the records from My Pulminary Dr. and the report on my right heart cath and the regular heart cath B/4 that.. Still trying 2 figure out what all this stuff says. The weather didnt let us get our shutle up yesterday..(It goes up from My backyard ya know) but maybe we will get it up next month.

Went to my Primary care Dr. yesterday about a large lunp in my upper leg. Its very sore and keeps me awake. He referd me to an Ortho. surgeon next month..

Yall stay cool and Breath easy..

Remember the Poacher..jo Luvs Ya All
Read Comments (0)   •    Make a Comment







Tuesday, May 02, 2000

Saturday.. Had Real bad chest pain..After two nitro went to ER. Couldn't breathe and was throwing up. In ER nitro #3 still didn't help. So thought for sure it was a heart thing. Then the ER folks gave me the drug of choice so to speak Morphine, and the pain went away. Up to a room. All kinds of tests are run EKG, X-rays.Spect Thalium nuclear stuff. and wouldn't ya know both my Heart DR and my Pulmonary DR were away for the weekend.. My coumadin was stopped becuase of the possilibity of a cath Mon.They washed out my lungs all weekend with ATROVENT/FLOVENT= COMBIVENT.. and put me on nitro paste, sleeping pill and vicodan. Guess that was so I wouldn't care how much it hurt..They offerd PERC.and DARV. But they make me hyper. Mon came and my Drs went over all the tests.. Said it was all PH related as the heart tests all looked good for me...Turned me loose with my coumadin and Nitro inhaler. VIcodan Ativan. Damn I wish I knew what all this stuff is.. I'm back hurting already....

Well the Alligator complaints are piling up Its mating season..... DAMN the PAIN!! Im out and about AGAIN..

Just a note so you won't think just bad things happen to me..Last Friday I gave a presentation on alligators to a second grade school class. My granddaughter wanted me there for show and tell. It went real well.. The best part was today.. My daughter brought me a bundle of letters from all the chlidren.. I thought it was wonderful....I wish I could show them all to you...

The Poacher..jo Luvs Ya All
Read Comments (0)   •    Make a Comment







Friday, May 05, 2000

Its great to be out of that hospital. I learned a lot more about my PH. It hurts much like angina. Anyway it looks like the meds Im on now for PH are: Coumadin, Oxygen, Albuteral. Im suposed to take Ativan (So I can put up with it I guess), Lortab which is Hydrocodon, (For when I cant put up with it I guess),and Temazepam ( So I can just sleep when the Ativan and Lortab dont work....Just a note Im on Cozar. Lasix,Tenorman HCTZ, Zocar, SloK,Nitro paste, Notrolinqual (Nitro spray)... No wonder I have a weight problem, Im sure all these pills, paste and sprays must have calories in them. (lol)....My gater trappin partner let me rest Tue. and Wed. But we went out yesterday and had a great day...He takes it real easy on me.. He does all the hard stuff and I get the easy part. Im sure he understands my problem....I did't sleep well lastnite, DAMN THE PAIN... Got up and played Amature radio for a while waiting for "Big Red" to show his shining face..He finaly showed up and my animnal friends were ready for breakfast. (Wild squrrels and birds)....I think they missed me the three days I was in the hospital... I took an oath never to go to the ER again.. Just like I always have....Maybe this time.....As if we didn't have enough problens... The "I love you" virus screws around with our computers....Lets not let it cause us all that much trouble and work through it... Remamber,"There are always alternatives".. The Poacher..jo said that!... The Poacher..jo Luvs ALL of Ya..

Dragon Slayer for hire...
Read Comments (0)   •    Make a Comment







Sunday, May 07, 2000

Not much sleep last nite.. Found out I had virus in my computer. considerd dropping out of all this to keep from spreading it but a very nice lady named Kathy spent most of the day talking me out of it.. Its under control now. Thanks to her patience. Lost all my ICQ addresses in the process. So Sherie in Isreal If you read this please give me a call on ICQ and anyone elce that would like to chat with me.. My ICQ NR is 46171752.. Just leave me a note Ill get back with you..Im having fun with the folks on PHLand.. Come watch us or even join us if you dair....Hey what the heck I spellum like I want to.. Who gave Webster the rite to say how wurds sposed 2 B spelt..."I cant remember anything I ever forgot" The Poacher..jo said that and you can go write it down somplace. Poacher..jo Luves Ya... Ya know and hopes your air is sweet and cool..
Read Comments (0)   •    Make a Comment







Monday, May 08, 2000

Big red came up in full bloom this morning.. Went to heart rehab and had a fight with them about a slip to get me back in the program. Came home got the slip, returned to rehab and told them they could have the slip but I wouldn't be back. I wouldn't have ben alowed to work out anyhow they had erated me enough to get my BP up to 189/122. and my sugar was 186. and pulse up to 110. nml morning readings are 120/76, 130/ 46.. Needless to say I didnt need to hang around that place..Came home and started to do battle with the computer trying to get KAK out...Had two very nice ladies trying to help me and I just misunderstood them more and more as the day went along. I told them I just wanted to quit because I was seeing more stuff on the phfriends about my computer problem and showing just how computerdumb I am and I finaly dropped out of the list. Im new to the list and I feel its ment for other things like discussions about PH problems and emotional problems rather than my technical problems.. My hunting partner Gater Bill came by to take me hunting with him and didnt think I looked in good enough condition to go and said maybe tomorrow.... Anyhow MIMI called me on the fone and very carfuly walked me though kicking KAK Virus out of my computer and I am very thankful that she was there for me in one of my more trying days.. Im alone again.. K is babby sitting for a while with the grandkids while ny daughter and soninlay are away to California on church business... The house is quiet and I can do some thinking..

Note we finaly got that pesky Titan rocket up up and away..

Sorry I cant make this more interesting but somdays are just not as good as others.. Maybe I should say that a little different some days are not quite as interesting as others.. May Your Breath Be SWEET and COOL and Sleep Be DEEP. And for heven sakes while sleeping dont just lay there DREAM DREAM DREAM I never sleep and not DREAM The Poacher..jo Loves Ya..
Read Comments (0)   •    Make a Comment







Tuesday, May 09, 2000

Oh my No sleep again lastnite.. too much pain and too many things on my mind.. So I drove out to our Gun Club Range, went back through the woods to a small lake where I know some large old gaters hang out.. Its mating season for them now. And It was interesting..The Bulls make a loud roar somthing like an African Lion and or a poorly played G on a French horn...Then they do a lot od mooving around showing each other how big they are by holding themselves high in the water.. Thats called profiling...I didnt see any physical contact lastnite nither sexual or fighting.. Its mostly just arguing about what girls belong to what guy..I had a nice chat with Terri for a while..This afternoon. She told me about as page where I could monitor the goings on in PHfriends.. I tried it but they wouldnt let me in because Im not a member..Vicky/victoria also told me about a page I could monitor and even send notes as an unknown, but I havent heard from her on that yet...Oh well it all works out for the best they say.. I see there is a groupe for cronic lung (folks) forum... I might check that one out..

A Good note..My Gater hunting Bossman came by this afternoon and took me out to work a few complaints and we did real good I Killed a seven foot seven and a ten foot eight.. Realy pirked me up.. Maybe Ill sleep tonight..

Yall Remember now... The Poacher..jo loves ya.. Hope your breathing is cool sweet and deep.. When you sleep....Dream..
Read Comments (0)   •    Make a Comment







oldest to recent

1   2  3  4  5  6  7  8